Quincy was born on Aug. 21, 2015 with a rare congenital heart defect known as Ebstein’s anomaly. In addition, he also has a patent foramen ovale hole and pulmonary dysplasia. We found out about Quincy’s condition when I was 32 weeks pregnant, which was very devastating and frightening for our entire family. We were told while I was pregnant that he had a 50 percent chance of survival upon delivery. Quincy beat the odds with that one! Those days were extremely scary for us, but the staff and physicians of the cardiac intensive care unit (CICU) at Children’s Hospital of Pittsburgh of UPMC were excellent with his care. Because of them, he was home just 6 days after he was born.
At about one month old, Quincy’s heart failure started to worsen. He was hospitalized at that point, from one month of age up until he was 5 months old. Quincy was hospitalized a few times a month, but the staff was always excellent and never once did we second guess what they wanted to do with treatment. They kept us very informed with everything along the way being very caring and providing us support.
On Feb. 2, 2016, Quincy was admitted to Children’s Hospital after he was having feeding and breathing issues. We were told we would be admitted for a few days for evaluation, but his test results told us differently. He needed open heart surgery. This surgery wasn’t supposed to be performed until he was between the ages of 2 to 5 because it is a tricky surgery, but Quincy’s case could not wait.
Dr. Evonne Morell, director, Inpatient Cardiology Services, wanted Dr. Jose Pedro da Silva to perform the surgery. At that time, Dr. da Silva recently just came to Children’s from Brazil. He is the surgical director of the Center for Valve Therapy at Children’s.
Quincy’s surgery on Feb. 16 was called the Cone procedure. This procedure was invented by Dr. da Silva. He was unable to perform surgery at the time, but he was right alongside Dr. Victor Morell, chief of the Division of Pediatric Cardiothoracic Surgery, working together to ensure Quincy had an excellent result. Quincy was the first patient in the United States having the Cone procedure with Dr. da Silva’s contribution.
Post-surgery was very scary for all of us, as Quincy suffered three cardiac arrests. He also ran into several other scary events and it seemed like it was never ending. But the team of physicians and the staff in the CICU was nothing but GREAT! They saved our baby boy not once but three times! We will never be able to say thank you enough.
Quincy is now one and has defeated all the odds. He will never fully be better and will need more interventions down the road, but he is here and that is what matters. There is a reason our baby boy is here. It is because of all of the staff at Children’s. We would like to give a special thank you to Dr. Evonne Morell, Dr. Victor Morell, Dr. Jose Pedro da Silva, the CICU staff, 7a nursing staff, and Lauren from Child Life who was our rock during our toughest moments!