Children’s: Top-Notch Care for Both Body and Spirit

By Sharon Nanz, mother and Lindsey Nanz, daughter Background: Our daughter Lindsey was diagnosed with primary sclerosing cholangitis in September 2009, at age 13. PSC is a progressive disease that causes inflammation and scarring of the bile ducts in the liver, as well as cirrhosis. The condition gradually worsens and complications develop. The only viable treatment… Read more »

CF, in the Eyes of an 8 Year Old

By Sydney Willig Cystic Fibrosis is something I have always had.  CF is not fun.  Before school and before bed, I do my puffers, fishy mask and vest.  Before I eat anything, I have to take pills so I don’t get sick. With breakfast, lunch, dinner, and snacks, I take 6 pills.  I even have… Read more »

Matisse Reid: Life Begins at Children’s

A Life without Eating Imagine sitting down at the dinner table and not being able to eat anything on your plate. For Matisse Reid, eating is something she has been unable to enjoy for nearly 10 years. Born with a rare medical condition called chronic idiopathic intestinal pseudo obstruction, Matisse has been fed intravenously her… Read more »

Stay Safe on Halloween!

By Dr. Barbara Gaines, Director of Trauma and Injury Prevention Halloween is my favorite holiday. For me, it’s all about the kids.  I was never into the scarier stuff, or even the parties. But rather, the excitement and anticipation of kids as they figure out the perfect costume, plan their night, and sort their candy…. Read more »