Goodbye to our Beautiful Mckinlee

Mckinlee was born with Transposition of the Great Arteries. She was 1 of 100 babies born each year with a Congenital Heart Defect. Her CHD was not discovered prenatally, and she was flown to UPMC Children’s Hospital of Pittsburgh shortly after birth. During her stay, she underwent five open heart surgeries, four trips to the… Read more »

Coping with Bereavement

The death of someone you love is one of the greatest sorrows you can endure. July is Bereaved Parent Awareness Month and we wanted to share our story, a look into our medical journey with Zane and Zayva, and coping with bereavement. Zane was born on June 28, 2012. Before he was born, we only… Read more »

Cleft-Craniofacial Awareness Month: Abby’s Journey

This is my daughter, Abby. She is almost 6 years old and enjoys things that many other 6-year-olds do, like playing outside, swimming, cheering for the Pittsburgh Pirates, playing dress-up with her sisters, reading books (especially Fancy Nancy books), watching movies (especially Disney movies), and doing anything artistic. Right now, she is super excited for… Read more »

Gaming for Wings: Creating Stories That Will Last Forever

The Red Fred Project began in 2012 with a man named Dallas Graham, who had someone close to him with Duchenne muscular dystrophy. Dallas wanted to write a book with this young boy, but never got the chance. His story inspired the journey to choose one child living in extraordinary circumstances from each state to… Read more »