Posts Categorized: Uncategorized

Walking for Bennett

Bennett was born with more complexities than your typical child. One particular complexity that he was born with was a rare, congenital cystic airway malformation  known as congenital cystic adenomatoid malformation, that needed to be removed. In February of this year, Bennett had a full lobectomy, removing the bottom lobe of his right lung. Because he… Read more »

My Story of Organ Transplant and a Personal Link with My Surgeon

We don’t always know how our life experiences may affect our paths or how our lives may intertwine with those most important to us. I don’t remember having a liver transplant.  And I don’t remember battling the original disease which I was born with.  But that’s because it all happened before I was a year old…. Read more »

World Down Syndrome Day

World Down Syndrome Day was first observed by the United Nations on March 21, 2012.  It has been celebrated on March 21 every year since then.  Why March 21?  Well, it’s all about the genes!  Most people have 23 pairs of chromosomes.  Chromosomes are what carry all of our genes. People with Down syndrome inherit one… Read more »

Angels Fund Supports Children’s

The Angels Fund was recently at Children’s Hospital of Pittsburgh of UPMC to donate $60,000 for families! The Angels Fund was started in 2011 by Dr. Marion Vujevich and his son Dr. Justin Vujevich who were noticing that many of their own patients in their dermatology office were not making follow up visits due to cost…. Read more »

My Visits to the Spina Bifida Clinic at Children’s Hospital

Hi! I’m a happy and healthy 10 year old girl named Amanda. I love to write, dance and ride horses. I am also learning to swim. Oh yes, and I have Spina Bifida. I make regular visits to Children’s Hospital of Pittsburgh of UPMC and especially to the Spina Bifida Clinic. So, I have lots… Read more »