Posts Categorized: Transplant

Children’s: Top-Notch Care for Both Body and Spirit

By Sharon Nanz, mother and Lindsey Nanz, daughter Background: Our daughter Lindsey was diagnosed with primary sclerosing cholangitis in September 2009, at age 13. PSC is a progressive disease that causes inflammation and scarring of the bile ducts in the liver, as well as cirrhosis. The condition gradually worsens and complications develop. The only viable treatment… Read more »

Matisse Reid: Life Begins at Children’s

A Life without Eating Imagine sitting down at the dinner table and not being able to eat anything on your plate. For Matisse Reid, eating is something she has been unable to enjoy for nearly 10 years. Born with a rare medical condition called chronic idiopathic intestinal pseudo obstruction, Matisse has been fed intravenously her… Read more »

A Blog by Luke

By: Luke Maeding, double-lung transplant recipient at Children’s I’m at the hospital in Pittsburgh. You can get beads for every time you have surgery or something scary done. They are Beads of Courage. Each day you circle the beads you need for your child. Find the day you are on and circle the beads you need…. Read more »

My Life as a Transplant Recipient

By: Allison Sklarew Eleven years ago this month, a four-year-old girl was about to be wheeled into the hospital room for a transplant. Although she didn’t understand it yet, she was getting a life-saving surgery. She got a quick kiss on her cheek by her parents and entered the room. She fell under a deep… Read more »

Luke Ball: A New Heart

Luke Ball: A New Heart In January 2004, during a routine ultrasound, John and Stacie Ball learned their soon-to-be son, Luke, would be born with a complex congenital heart defect. With limited treatment options available, this unexpected news sent the family on an emotional roller coaster in understanding the challenges that lay ahead. Although surgical… Read more »