Posts Categorized: Transplant

How to Talk to Family and Friends about Living Donation

If your child is on the waiting list for a liver transplant, it’s important to keep an open mind when it comes to living donation. A living donor can help your child receive a transplant sooner – saving their life. Sharing your child’s story and talking about their disease may be a challenge. How much… Read more »

Rare, Hereditary Conditions: Crigler-Najjar Syndrome

Crigler-Najjar syndrome is an extremely rare genetic disease. With only 100 cases recorded, it often affects children from Amish and Mennonite families. To meet some of the children on the liver transplant waiting list and to learn about becoming a living donor, visit UPMC.com/BeADonor. Bilirubin is a brownish yellow waste product found in bile that… Read more »

What Is Biliary Atresia?

Biliary atresia is a life-threatening condition that can affect a baby shortly after birth. This is when bile ducts, which are tubes that carry fluid from the liver to the small intestine, are blocked. The cause of biliary atresia is unknown. Over time, this can progress into more health complications for the baby, eventually leading… Read more »

Apples to Apples: What Families Should Know About SRTR Rankings

The SRTR is an independent, data-driven tool that will help you choose a transplant center. There’s a wide difference among the more than 60 pediatric transplant centers in the United States. Some do a few transplants a year, some do dozens. Some have been doing transplants for decades, others have less experience. Some have expertise… Read more »

Children’s is a Place of Miracles

Ryan Andrade spent 36 days lying in a hospital bed in Norfolk, VA. His family never thought that day 37 would be spent driving all night to meet him at Children’s Hospital of Pittsburgh of UPMC where he was transported by helicopter. At the time, Ryan suffered from chronic pancreatitis, an inflammation of the pancreas that does… Read more »