Posts Categorized: Transplant

Gaming for Wings: Creating Stories That Will Last Forever

The Red Fred Project began in 2012 with a man named Dallas Graham, who had someone close to him with Duchenne muscular dystrophy. Dallas wanted to write a book with this young boy, but never got the chance. His story inspired the journey to choose one child living in extraordinary circumstances from each state to… Read more »

Raising the Flag to Celebrate Donate Life Month

To commemorate April as Donate Life Month, the sixth floor Atrium at Children’s Hospital of Pittsburgh of UPMC filled with patient families, hospital staff, donors, and recipients to do one thing: talk about organ donation. Diane Hupp, chief nursing officer, kicked off the ceremony by thanking everyone in attendance including the Hillman Center for Pediatric… Read more »

Our Journey with GM3 – the Rarest of Rare Diseases

Despite the lobby’s mid-morning bustle, Connor Mast slept soundly in his stroller as his mother, Crystal talked, her voice tender but sturdy, “We had felt like our family was finished with Jordan but I got pregnant and Connor came. We were a bit fearful because we knew that the percentage was high to have another… Read more »

How to Talk to Family and Friends about Living Donation

If your child is on the waiting list for a liver transplant, it’s important to keep an open mind when it comes to living donation. A living donor can help your child receive a transplant sooner – saving their life. Sharing your child’s story and talking about their disease may be a challenge. How much… Read more »

Rare, Hereditary Conditions: Crigler-Najjar Syndrome

Crigler-Najjar syndrome is an extremely rare genetic disease. With only 100 cases recorded, it often affects children from Amish and Mennonite families. To meet some of the children on the liver transplant waiting list and to learn about becoming a living donor, visit UPMC.com/BeADonor. Bilirubin is a brownish yellow waste product found in bile that… Read more »