Posts Categorized: Heart Institute

Quincy’s Heart Journey

Quincy was born on Aug. 21, 2015 with a rare congenital heart defect known as Ebstein’s anomaly. In addition, he also has a patent foramen ovale hole and pulmonary dysplasia. We found out about Quincy’s condition when I was 32 weeks pregnant, which was very devastating and frightening for our entire family. We were told… Read more »

Grateful for Children’s

When you are going to have a baby, everyone tells you that you will be tired, confused, and at times scared. What you don’t know is the heaviness you feel in your chest that would come the first time you look into those big eyes. This heaviness is even greater when the doctors come back… Read more »

Our Miracle

Today is Rare Disease Day. The main objective of this day is to raise awareness about rare diseases and their impacts on patients’ and their families’ lives. In the United States, a condition is considered “rare” if it affects fewer than 200,000 persons combined in a particular rare disease group, according to Global Genes. Ian… Read more »

Children’s Hospital: An Institution to Which I Owe 7,868 Days of My Life (And Counting)

At less than one day old, I was flying through the sky on the way to Children’s Hospital of Pittsburgh of UPMC. My walnut-sized heart contained a congenitally defective aortic valve that would require an immediate catheter-based procedure, open heart surgery at 13 years old, and would necessitate life-long monitoring and re-intervention. While the memories… Read more »

Nolan’s Heart of Steel

At one-year-old, Nolan McLaughlin has already been through more than most. Born six weeks early, Nolan was in and out of hospitals as he fought respiratory issues. On Sept. 30, 2013, at just five months old, his condition went from bad to worse. This time Nolan wasn’t responding to the normal treatments. Doctors did a… Read more »