Coping with Bereavement

The death of someone you love is one of the greatest sorrows you can endure. July is Bereaved Parent Awareness Month and we wanted to share our story, a look into our medical journey with Zane and Zayva, and coping with bereavement. Zane was born on June 28, 2012. Before he was born, we only… Read more »

Cleft-Craniofacial Awareness Month: Abby’s Journey

This is my daughter, Abby. She is almost 6 years old and enjoys things that many other 6-year-olds do, like playing outside, swimming, cheering for the Pittsburgh Pirates, playing dress-up with her sisters, reading books (especially Fancy Nancy books), watching movies (especially Disney movies), and doing anything artistic. Right now, she is super excited for… Read more »

Gaming for Wings: Creating Stories That Will Last Forever

The Red Fred Project began in 2012 with a man named Dallas Graham, who had someone close to him with Duchenne muscular dystrophy. Dallas wanted to write a book with this young boy, but never got the chance. His story inspired the journey to choose one child living in extraordinary circumstances from each state to… Read more »

Our Miracle Baby

Our daughter Elizabeth was born prematurely in 2013 after a difficult pregnancy, and has been diagnosed with multiple genetic diseases. She is no stranger to doctors and hospitals, and we are very grateful for Children’s Hospital of Pittsburgh of UPMC. Her primary diagnosis is a rare genetic disease called ZTTK Syndrome, which is a severe… Read more »